My Story

January 26, 2011 60 Comments TAGS: Kids, Stress, Wellness

I debated whether or not to share my story. Many of you will wonder why I am sharing it. My goal is that by the end of this post, you will understand why I have chosen to share my journey– one that is still in progress. I’m scared. I’m scared shitless. And I’m praying.

Here’s my story.

Last Monday while in the shower, I felt a lump in my breast. It stopped me dead in my tracks. I felt so dizzy, especially under that hot water, that I had to get out, even with shampoo still in my hair. I felt it. I felt it again. It was big. I looked in the mirror and you could visibly see it by simply looking without touching. I shouted for my husband down the hall. He felt it, and tried to calm me down and reassure me it was the same cyst from when I experienced my breast cancer scare at 22.

“We’ll call the doctor tomorrow and you’ll have it checked,” he said. “Don’t come to any conclusions until you see Dr. X.” Well that’s obviously easier said that done. Tuesday morning, I called my breast surgeon, and the secretary told me to come in right away. I was leaving for Nashville, so it would have to wait until this week. Yesterday at 9:15am, I had my appointment.

I planned on going alone because this lump was in the same area as my benign cyst from years ago. My doctor was aware of it, so while I was concerned, I was expecting her to say it’s just a big cyst. My husband looked at me yesterday morning and said, “Honey, I really want to come with you. I want to be there.” My first reaction was no, but then I felt it again, and it really didn’t feel right. I said, ok.

We walked into the doctor’s office, and I didn’t have to wait long. My doctor pulled out her yearly drawings of my two breasts, with a dot on the right breast– the area she checks every year. She asked me when I had noticed the lump. I told her a week ago. She asked me to get undressed from the waist up, and wait for her in her examining room.

She began to examine me. Our usual yearly chit-chat about life as she feels up my boobies didn’t take place. Neither one of us said a word. She then told me she’d like to call down to the breast center and order me an ultrasound right away. I started to shake. I’m not a shaker, I swear. But I felt my hands tremble, and I started to cry.

“I’m pretty sure it’s just glandular, but it’s definitely odd, and I want it checked out immediately,” she said to me. My husband was sitting next to me holding me hand, and I saw his face – white. I looked at my doctor, “I’m 35. I have two young boys. I need to be here for them.” She knew. She got it. She took my hand.

She then left me on the table and returned about two minutes later and told my husband and I which wing in the hospital to go to. I got dressed. We gathered our belongings and walked over to the breast center.

When we walked in, there were dozens of women. About 10 in the waiting area, and about another 15 down the hallway in blue gowns waiting for mammograms. I walked up to the receptionist and told her Dr. X had just called in for me. She told me to wait in the waiting area for a moment. I asked her if I should take a number, all the women were taking numbers. “No, you don’t need a number. You are going right through.”

Let me stop by telling you that it is a feeling beyond words. I cannot describe it to you. It was truly an out of body experience.

Back to the story. My husband was not allowed to walk past the waiting room… it is for women only. I went into the changing room, and again undressed from the waist up. I put on my blue gown, and was directed right to the ultrasound room. Most of the women waiting in the corridor were staring at me. They were all in their 50’s and up. I was clearly the only young woman there, as well as the only one crying. They all gave me nods, smiles and a look that can only be described if you were there. A feeling of support, solidarity and concern.

I walked in, and this wonderful woman by the name of Jodi told me she was going to be ultrasounding my breast. Her face was so kind, it felt so safe with her. “I’m very strong, but I won’t be able to fight this if it’s breast cancer. I know at 35 years old, the treatment will be very aggressive. I can’t do it,” I said quietly.

“One step at a time, ” Jodi replied. Then she began the ultrasound. I was silent. Just more tears as she ran the jellied machine over my right breast. She told me not be alarmed, that she was going to take many pictures. I laid there still as she worked. Then I asked her, “How does it look?” She replied, “Everything seems to look okay. I am optimistic that we’re not seeing anything bad here.”

Then I let it all out. I cried. Hard. Some good news. She went to get the radiologist who then ultrasounded me again. “Yes, it does look glandular, but the lump is very large and I want to biopsy it to make absolutely certain that it’s clean.”

As Jodi held my hand, the doctor explained to me what they were going to do. A needle would freeze the area, and they were going to take 3 samples of tissue from my breast. I’d hear a loud “pop” three times, and to not be alarmed. I’d be sore afterwards. I could apply ice and take Tylenol. I’d have results, good or bad, in 5-10 days.

I sat with my eyes closed as the needle went it. Jodi held my hand. My husband was not allowed in. My mother was also waiting outside by now. They were so gentle, kind and understanding. I heard the final third “pop.” They had their 3 samples. It was over. The doctor told me he’d put a rush on it, and my Dr. X would call me either way.

I walked out to the waiting room and saw my mom and husband. My mom was crying. My husband was white. I just kept thinking over and over about my little boys.

The doctor came to reassure me again, everything looks good. The biopsy was to just rule everything out. But that he’s very optimistic and almost 100% sure it’s not cancer. We all walked out. And I was pretty much numb – in every sense of the word.

And so, that’s where I am today, January 26th, on ironically of all days, National Wear It Pink Day. I don’t know the results. This isn’t a story after-the-fact. I’m living it and still in it. I am hopeful, optimistic and praying.

But the reason for the Blog, is to tell you one thing– secrets are toxic. No one, including you, has to live in silence and fear. Living in the fear, all alone, is not your only option. And this goes for any struggle you may experience in your life. When we live with truth, we can live without fear. And support is everywhere, sometimes where we least expect it.

Against the suggestion of my beloved family, I went to a board meeting for my son’s school after my biopsy last night. Three of the moms (who are also my friends), said to me afterwards, “Is everything ok? You don’t look yourself.” I started to tear up, and I shared the events of the day. I know they were shocked that I shared it. And I told them what I just told you. I don’t believe in living in secrecy and shame. And that personally for me, I’m not good at faking it. Their eyes welled up, and while the four of us were standing outside in the freezing cold and hugging, one of my friends said, “You are an example of how people should live their life. Plus the more people that know, the more people that can pray for you.”

So, in the words of Oprah (who you all know I adore)– That’s the truth as I know it. I’m petrified, but optimistic. I’m feeling overly sensitive today, and that’s fine. Perhaps you can hold me in your prayers. I’ll tell you when I know, either way.

Thank you for reading.

xoxEDxox

    60 Comments

    1. […] breast cancer is near and dear to my heart, having had family members with breast cancer, and my own personal scare a few years ago, I thought it would be IRRESPONSIBLE of me not to share the above photo for […]

    2. SharonNo Gravatar says:

      I was diagnosed a few weeks short of my 28th birthday, had 2 surgeries (the first surgeon didn’t bother with the margins since he assumed he would be going back to do a mastectomy – WRONG – I changed doctors!) then 6 months of chemo + 5 weeks of radiation. I am now 50 so a long term survivor which I hope gives you some encouragement. Since my diagnosis, I have gotten (and stayed!) married, had 2 kids, breast fed them both (1 side only) and still get nervous for my annual mammogram and checkup. My mantra is “this too shall pass”, and it will – be strong when you can, weak when you need to, let others help and carry on one day at a time until it is over and behind you too. Best wishes for a complete and speedy recovery.

    3. Lisa EdzardsNo Gravatar says:

      I found your blog post by chance searching the internet, as I am in the middle of my on scare. I have had an area of concern that I was told waa a abscess due to mastitis with all 4 of children. In 2007 and now 2 weeks ago it filled up the size of a large grape and was very painful. Ultrasound and mamo found something, so today I met with a breast surgeon. She feels confident it is a large cyst and I am scheduled for surgery next week. I feel better that the dr thinks it will be ok, but I am still scared out of my mind. Your post helped me to know that it is ok to be scared, even if it is probably nothing. I can’t stop thinking of my kids who need me. Thank you for helping me tonight. So glad you are ok 🙂

    4. […] breast cancer scare that sent me in a tailspin, but in the end, made me truly appreciate life so much more. And made me […]

    5. hillaryNo Gravatar says:

      Erica.
      Hang in there sweety. My mum was diagnosed when she was 34. I was 8. Mum recalls crying in front of the mirror because she thought she wouldn’t see her daughter get married….she was very much at and involved in my wedding. Big hugs to you. x x x

    6. You gave tremendous positive points there. I did a search on the topic and found most peoples will agree with your blog.

    7. KiriNo Gravatar says:

      Erica I had to stop everything and read this story. Thank you for sharing! I’m absolutely certain you are fine. We are all here for you.

    8. AdviceNo Gravatar says:

      Another great article!

    9. NicoleNo Gravatar says:

      Erica – thank you for sharing your story. It was extremely brave of you to put your story out there, but I know that it will give other women courage to stay strong, and know that with strength, they can face any battle. I saw your vlog follow up and know that everything is okay, and am so happy for you and your family. Thank you again for opening up about your journey and hopefull it will encourage others to face their own stories

    10. Glady FulferNo Gravatar says:

      been following your blog for 3 days now and i should say i am starting to like your post. and now how do i subscribe to your blog?

    11. Im glad to read your post. Good job, thanks

    12. LIVESTRONGNo Gravatar says:

      Whatever happens, know that LIVESTRONG is here for you to offer info on available treatment options, clinical trials, help dealing with insurance and job discrimination as well as emotional support from professionals and survivors. Call us at 1-855-220-7777 or online: http://bit.ly/bdOhiE We just posted info on our blog last week about how to tell your kids you have cancer. Although it is our deepest hope this is not the case, we want to make sure you have this info: http://livestrongblog.org/2011/01/27/how-do-i-tell-my-kids-i-have-cancer/

      Peace and Strength.

      LIVESTRONG

    13. […] Money ERICA'S BOOK « My Story […]

    14. ET Mom says:

      All will be fine. Just believe in that. Ask. Believe. Receive. Wishing you the best!

    15. Alison p-hNo Gravatar says:

      Oh my goodness. I only recently found your blog but your personality shines through that I feel I know you well. To say the least you brought tears to my eyes. I only wish the best for you and your family. I really do hope that it is nothing. Sending you a big big hug from Ottawa.

    16. Anja says:

      Hi Erica,

      I feel really sory for you that you have to go through this. Your story remind me a bit of what I went through 2 years ago. I also felt a lumb in my breast, I checked like a thousand times and yes it was definitely there. So I also went through that very scary time and remember very well how I sat there all by myself waiting at the specialist,…. Long story short, I was so lucky that it only were cysts,…

      I want to wish you and all women who has to go true this lots of strength and I’ll keep you’ll in my prayers,..

      Love, Anja

    17. MarisaNo Gravatar says:

      Came here via your Twitter, but was not expecting this. It hit a nerve with me and I am trying hard to hold back tears.
      Have faith in your doctors, they seem confident that it is not cancer. In the event that it is (and I hope and pray that it is not), just know that you can fight this ugly disease with the same gusto and strength that you possess and have made you the successful woman you are today.
      I was diagnosed with Lymphoma when my oldest child was 2 and I was pregnant with my second child. After delivering my daughter prematurely, I went on to successfully fight it with chemotherapy but more importantly a strong support system and strong will to live…for myself, my husband, my family and my children.
      I will be thinking positive thoughts for you.

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